The Essex Rheumatology Trust
Objectives
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Objective 1

To alleviate pain, suffering, disability and incapacity of people of all age groups suffering with various inflammatory and non-inflammatory rheumatic diseases, osteoporosis and musculoskeletal conditions such as spinal pain and soft tissue problems

Activities

We intend to appoint a rheumatology specialist community nurse who will detect, diagnose and provide advice for these patients. We intend to use our funds to purchase diagnostic equipment and treatments. Development of guidelines to better diagnose and treat these patients

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Objective 2

To assist in the education of people suffering with various inflammatory and non-inflammatory rheumatic diseases, osteoporosis and musculoskeletal conditions such as spinal pain and soft tissue problems

Activities

We are planning to launch the charity on 4th July 2007 with an open day consisting of poster displays, drop in sessions, open lectures and workshops.

We will continue with a series of lectures across the county and will develop a web site.

We also intend to set up a mobile information centre and a help line. There is an established patient PMR support group which we intend tosupport and advertise and develop patient support groups for the other disease areas.

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Objective 3

To assist in research, development and use of new equipment related to the management of patients with such conditions.

We intend to work with other charities including the Essex Disabled Association, Arthritis Research Council, Arthritis care and other national charities to support and develop research studies into these conditions and develop and research equipment for the diagnosis and management of this group of people.

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Objective 4

To develop the awareness in wider society in wider society of the impact and disability to these related conditions

Activities

Series of open lectures. Development of information booklets and leaflets to distributed in libraries, doctors surgeries and other organisations around the county.

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Objective 5

To facilitate and improve the provision of care for people suffering with such conditions

Activities

The Specialist Rheumatology Community nurse will assist with early recognition and expedite referral to specialists. Development of support groups, supporting and developing research on diagnosis and treatments.

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Objective 6

To work with other international, national and regional bodies for the implementation of standards of care for people suffering with such conditions

Activities

We intend to collaborate with regional, national and international bodies to research diagnosis and treatments for people suffering with these conditions so we can publish evidenced based guidelines.

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Professor Dasgupta already works in collaboration with the Essex Rheumatology Association, is the convenor for Polymyalgia Rheumatica (PMR) and Giant Cell Arteritis (GCA) guidelines with the British Society of Rheumatology and is a Lead investigator developing research on the diagnosis and management of patients with PMR in conjunction with the American College of Rheumatology (ACR) and the European League Against Rheumatism (EULAR)